10/30 #CripTheVote chat: Healthcare
#CripTheVote Twitter Chat
Healthcare
Thursday, October 30, 2016
7-8:30 pm Eastern
Guest hosts: Ari Ne’eman and Maelee Johnson
Hosted by Andrew Pulrang, Gregg Beratan, and Alice Wong, #CripTheVote Twitter chats explored various policy issues important to people with disabilities this year. Our 13th Twitter chat will focus on healthcare and we are thrilled to have two guest hosts who are passionate about this subject: Ari Ne’eman and Maelee Johnson.
Since this will be our final chat before Election Day, it will be 90 minutes and chock-full of good stuff. You can find the questions for this chat in this post. The Twitter chat will be archived in Storify for anyone who would like to see it in chronological order at a later date.
How to Participate
Follow @AndrewPulrang @DisVisibility @GreggBeratan @aneeman @Mae_DayJ on Twitter
When it’s time, search #CripTheVote on Twitter for the series of live tweets under the ‘Live’ tab to follow the full conversation.
If you might be overwhelmed by the volume of tweets and only want to see the chat’s questions, check @DisVisibility’s tweets. Each question will tweeted 4-5 minutes apart.
Use the hashtag #CripTheVote when you tweet. If you can’t join us on 10/30, feel free to tweet anytime before or after with the hashtag.
If you don’t use Twitter, check out the live-stream:
Check out this explanation of how to participate in a chat by Ruti Regan: https://storify.com/RutiRegan/examplechat
Questions for the 10/30/16 Twitter Chat
Welcome to our chat on healthcare w/ guest hosts @aneeman & @Mae_DayJ! Please remember to use the #CripTheVote hashtag when you tweet
Quick reminder: this chat will be 90 minutes instead of the usual hour. Feel free to take breaks! #CripTheVote
If you respond to a question such as Q1, your tweet should follow this format: “A1 [your message] #CripTheVote
During this chat, ‘healthcare coverage’ can refer to #Medicaid, #Medicare, employer-based insurance…#CripTheVote 1/2
… insurance from a state or federal exchange, Veteran’s Health Admin., Children’s Health Insurance Program, or other #CripTheVote 2/2
Q1 If you are willing, share with us the type of healthcare coverage you have & how important it is to your life. #CripTheVote
Q2 Have you faced any challenges or barriers in becoming eligible, affording, or keeping your current healthcare insurance? #CripTheVote
Q3 If you used to be uninsured or are currently uninsured, how does lack of coverage impact your life as a disabled person? #CripTheVote
In the last 2 debates, Trump said he would repeal the Affordable Care Act and many in the community #CripTheVote tweeted about it
The ACA requires insurance plans to cover preventive care and they cannot deny coverage based on pre-existing conditions #CripTheVote
Q4 Describe how Obamacare changed your life (if it has). What are the strengths/drawbacks about the ACA for disabled people? #CripTheVote
Q5 What are your fears when politicians say they want to repeal the ACA? How would your life change if it was repealed? #CripTheVote
Many disabled people go into medical debt or spend a lot $$$ for meds, therapies, hospital stays, supplies, DME, etc #CripTheVote
Q6 What are some things you need for your health that aren’t covered? #CripTheVote
Q7 Finding a primary care doc can be hard. For disabled people who need specialists it can be tougher. Tell us your stories. #CripTheVote
Q8 Should Long Term Services and Supports be part of healthcare policy, or separate? Should integration be the goal? #CripTheVote
Q9 What’s your stance on legalization of medical marijuana? What other forms of pain relief do you rely on? #CripTheVote
Q10 What is missing in the conversation about the abuse of opioids & prescription meds that non-disabled folks don’t get? #CripTheVote
Q11 Mental health care is often separate from local health systems in general. What changes can improve access to MH services? #CripTheVote
Q12 What are some changes or recommendations you’d like to make about medical treatment for specific disabilities? #CripTheVote
Q13 Only recently, clinical studies considered differences gender & race. How can research be more inclusive of disabled ppl? #CripTheVote
Q14 The health disparities btwn disabled & non-disabled ppl are shocking. What have you seen & experienced? How can it change? #CripTheVote
Q15 Why do so many people associate disability w/ poor health? How do you participate in wellness and physical activity? #CripTheVote
Q16 What is your dream healthcare scenario? What would the system and services look like? How would it serve all people well? #CripTheVote
This ends our #CripTheVote chat on healthcare. Many thanks to everyone who participated. Please continue the convo!
This Twitter chat will be archived in Storify later this evening. Look for the link with the hashtag #CripTheVote
Additional links
Snapshot of Where Hillary Clinton and Donald Trump Stand on Seven Health Care Issues
Kaiser Family Foundation, October 6, 2016
As Medicaid loses stigma, election may cloud its future
Associated Press, October 24, 2016
Christopher Zara, October 24, 2016, Vice News
Health Care Law’s Beneficiaries Reflect Its Strengths, and Its Faults
Abby Goodnough and Reed Abelson, October 14, 2016, New York Times
The Public Health Statistic that Fails Disabled People
Reid Knight, October 19, 2016, Rooted in Rights
How Gaps In Mental Health Care Play Out In Emergency Rooms
Shefali Luthra, October 17, 2016, NPR
Healthcare Coverage and Access
The Commonwealth Fund
Disability Rights Education & Defense Fund
National Council on Disability
Reducing Health Disparities for People with Disabilities: A Public Health Challenge
Centers for Disease Control and Prevention
#CripTheVote
Resources on voting and people with disabilities:
http://disabilitythinking.com/election-2016-cripthevote
#CripTheVote Facebook Page:
https://www.facebook.com/CripTheVote/
A note on language and why we use the term ‘crip’
http://disabilitythinking.com/disabilitythinking/2016/3/28/cripthevote-notes-on-crip
#CripTheVote is a nonpartisan campaign to engage both voters and politicians in a productive discussion about disability issues in the United States, with the hope that Disability takes on greater prominence within the American political landscape.
While #CripTheVote is a nonpartisan project, we understand that many people have already developed preferences for particular candidates. This is great–we only ask that everyone is respectful in their interactions with each other. Our primary focus here is on increasing engagement with disability issues as a part of American politics and on the need for that we are all in agreement!
Please note we do not represent the entire disability community nor would we ever claim to do so. There are many ways to create social change and engaging in conversation is one approach.
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