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Ep 74: Coronavirus and Caregiving

 

What a time to be alive right now, huh? How are you all holding up? Me, I’m honestly trying not to freak out. The shit is real. What gives me hope and keeps me going is seeing the wisdom of disabled, chronically ill, older, and immunocompromised people in the beginning of the coronavirus pandemic. We have seen and been through things.

Today’s episode is about the coronavirus and caregiving with Dawn Gibson and Heather Watkins. Dawn is the founder and host of the Spoonie Chat, an online community on Twitter and Facebook, she’s also a patient advocate, writer, and consultant. Heather is a Boston-based disability rights activist, author, mother, speaker. Dawn and Heather talk about how they are taking care of themselves right now, the impact of the coronavirus pandemic on their daily lives, and their experiences as caregivers. I believe we are modern-day oracles and it’s time for people to listen to us.

Transcript

[Google doc]     [PDF]

Related Links

 

I Still Have Complications from the 2009 Swine Flu, So Understand Why Coronavirus Is Worrying People with ‘Underlying Health Conditions, Dawn Gibson, March 5, 2020, Creaky Joints.

#Coronavirus and the disability community: Collection of stories, articles, and resources.

An Unacceptable Sacrifice: Fatphobia, Ableism, and the COVID-19 Pandemic, Finn Gardiner, March 30, 2020, Disability Visibility Project.

Virtual Home Building & Rebuilding: Disabled Communities in the COVID-19 Pandemic, Amy Gaeta, March 26, 2020, Disability Visibility Project.

Ep 48: Care Work with  Leah Lakshmi Piepzna-Samarasinha, April 7, 2019, Disability Visibility podcast.

Ep 58: Twitter chats with Dawn Gibson and Alex Haagaard, August 25, 2019, Disability Visibility podcast.

I’m disabled and need a ventilator to live. Am I expendable during this pandemic? Alice Wong, April 4, 2020, Vox.

About

Black woman with curly natural hair wearing a white top with streaks of pink, red, and gray. She is smiling at the camera.
Black woman with curly natural hair wearing a white top with streaks of pink, red, and gray. She is smiling at the camera.

Dawn Gibson, best known as @DawnMGibson is a well known  patient advocate and e-patient, writer, and patient experience consultant working in an advisory capacity with corporations, foundations, researchers, and other thought leaders to form an accurate and helpful understanding of chronic illness and disability. 

She is the founder and host of the Spoonie Chat Twitter and Facebook communities, regularly fields questions posted to Twitter and the #SpoonieChat tag between events, and works to connect patients with essential self-care concepts, appropriate advocacy organizations, and each other.   

Tumblr: https://webauntie.tumblr.com

Light-complected Black woman shown shoulders up wearing hair in bun atop her head, blue button earrings, makeup with red lipstick and smiling. She is wearing olive-colored blazer and blue and white patterned blouse with long necklace of various blue-colored pendants
Light-complected Black woman shown shoulders up wearing hair in bun atop her head, blue button earrings, makeup with red lipstick and smiling. She is wearing olive-colored blazer and blue and white patterned blouse with long necklace of various blue-colored pendants

Heather Watkins is a Boston-based disability rights activist, author, mother, speaker, graduate of Emerson College with a B.S. in Mass Communications. Born with Muscular Dystrophy, loves reading, daydreaming, chocolate, and serves on a handful of disability-related boards. Her blog Slow Walkers See More includes reflections and insight from her life with disability.

Twitter: @hwatkins927

 

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Credits

Alice Wong, Writer, Audio Producer, Host

Cheryl Green, Text Transcript

Lateef McLeod, Introduction

Mike Mort, Artwork

Theme Music (used with permission of artist)

Song: “Dance Off”

Artist: Wheelchair Sports Camp

Music

Music “Broken,” by Kevin Brown, November 16, 2019

This work is licensed under the Creative Commons 0 License.

Sounds

“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.

8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.

One thought on “Ep 74: Coronavirus and Caregiving Leave a comment

  1. I’m doing good over here. My partner and I are holed up in our apartment for the most part, but at least we’re getting food. The governor is extending the stay at home order two weeks and it seems to flatten the curve, whatever that might mean. Check out my Quarantine Diaries Volume 2. It’s a random segment where I talk about life with this pandemic as a blind person, person with a second disability and with the whole community stigmatizing me over things I can’t do anything about.

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