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10/30 #CripTheVote chat: Healthcare

#CripTheVote Twitter Chat

Healthcare

Thursday, October 30, 2016

7-8:30 pm Eastern

Guest hosts: Ari Ne’eman and Maelee Johnson

Hosted by Andrew Pulrang, Gregg Beratan, and Alice Wong, #CripTheVote Twitter chats explored various policy issues important to people with disabilities this year. Our 13th Twitter chat will focus on healthcare and we are thrilled to have two guest hosts who are passionate about this subject: Ari Ne’eman and Maelee Johnson.

Since this will be our final chat before Election Day, it will be 90 minutes and chock-full of good stuff. You can find the questions for this chat in this post. The Twitter chat will be archived in Storify for anyone who would like to see it in chronological order at a later date.

How to Participate

Follow @AndrewPulrang @DisVisibility @GreggBeratan @aneeman @Mae_DayJ on Twitter

When it’s time, search #CripTheVote on Twitter for the series of live tweets under the ‘Live’ tab to follow the full conversation. 

If you might be overwhelmed by the volume of tweets and only want to see the chat’s questions, check @DisVisibility’s tweets. Each question will tweeted 4-5 minutes apart.

Use the hashtag #CripTheVote when you tweet. If you can’t join us on 10/30, feel free to tweet anytime before or after with the hashtag.

If you don’t use Twitter, check out the live-stream:

http://twubs.com/CripTheVote

Check out this explanation of how to participate in a chat by Ruti Regan: https://storify.com/RutiRegan/examplechat

Questions for the 10/30/16 Twitter Chat

Welcome to our chat on healthcare w/ guest hosts @aneeman & @Mae_DayJ! Please remember to use the #CripTheVote hashtag when you tweet

Quick reminder: this chat will be 90 minutes instead of the usual hour. Feel free to take breaks! #CripTheVote

If you respond to a question such as Q1, your tweet should follow this format: “A1 [your message] #CripTheVote

During this chat, ‘healthcare coverage’ can refer to #Medicaid, #Medicare, employer-based insurance…#CripTheVote 1/2

… insurance from a state or federal exchange, Veteran’s Health Admin., Children’s Health Insurance Program, or other #CripTheVote 2/2

Q1 If you are willing, share with us the type of healthcare coverage you have & how important it is to your life. #CripTheVote

Q2 Have you faced any challenges or barriers in becoming eligible, affording, or keeping your current healthcare insurance? #CripTheVote

Q3 If you used to be uninsured or are currently uninsured, how does lack of coverage impact your life as a disabled person? #CripTheVote

In the last 2 debates, Trump said he would repeal the Affordable Care Act and many in the community #CripTheVote tweeted about it

The ACA requires insurance plans to cover preventive care and they cannot deny coverage based on pre-existing conditions #CripTheVote

Q4 Describe how Obamacare changed your life (if it has). What are the strengths/drawbacks about the ACA for disabled people? #CripTheVote

Q5 What are your fears when politicians say they want to repeal the ACA? How would your life change if it was repealed? #CripTheVote

Many disabled people go into medical debt or spend a lot $$$ for meds, therapies, hospital stays, supplies, DME, etc #CripTheVote

Q6 What are some things you need for your health that aren’t covered? #CripTheVote

Q7 Finding a primary care doc can be hard. For disabled people who need specialists it can be tougher. Tell us your stories. #CripTheVote

Q8 Should Long Term Services and Supports be part of healthcare policy, or separate? Should integration be the goal?  #CripTheVote

Q9 What’s your stance on legalization of medical marijuana? What other forms of pain relief do you rely on? #CripTheVote

Q10 What is missing in the conversation about the abuse of opioids & prescription meds that non-disabled folks don’t get? #CripTheVote

Q11 Mental health care is often separate from local health systems in general. What changes can improve access to MH services? #CripTheVote

Q12 What are some changes or recommendations you’d like to make about medical treatment for specific disabilities? #CripTheVote

Q13 Only recently, clinical studies considered differences gender & race. How can research be more inclusive of disabled ppl? #CripTheVote

Q14 The health disparities btwn disabled & non-disabled ppl are shocking. What have you seen & experienced? How can it change? #CripTheVote

Q15 Why do so many people associate disability w/ poor health? How do you participate in wellness and physical activity?  #CripTheVote

Q16 What is your dream healthcare scenario? What would the system and services look like? How would it serve all people well? #CripTheVote

This ends our #CripTheVote chat on healthcare. Many thanks to everyone who participated. Please continue the convo!

This Twitter chat will be archived in Storify later this evening. Look for the link with the hashtag #CripTheVote

Additional links

Snapshot of Where Hillary Clinton and Donald Trump Stand on Seven Health Care Issues

Kaiser Family Foundation, October 6, 2016

As Medicaid loses stigma, election may cloud its future

Associated Press, October 24, 2016

Treated Like Addicts

Christopher Zara, October 24, 2016, Vice News

Health Care Law’s Beneficiaries Reflect Its Strengths, and Its Faults

Abby Goodnough and Reed Abelson, October 14, 2016, New York Times

The Public Health Statistic that Fails Disabled People

Reid Knight, October 19, 2016, Rooted in Rights

How Gaps In Mental Health Care Play Out In Emergency Rooms

Shefali Luthra, October 17, 2016, NPR

About the Affordable Care Act

Healthcare Coverage and Access

The Commonwealth Fund

Healthcare Access

Disability Rights Education & Defense Fund

Health Care

National Council on Disability

Reducing Health Disparities for People with Disabilities: A Public Health Challenge

Centers for Disease Control and Prevention

#CripTheVote

Resources on voting and people with disabilities:

http://disabilitythinking.com/election-2016-cripthevote

#CripTheVote Facebook Page:

https://www.facebook.com/CripTheVote/

A note on language and why we use the term ‘crip’

http://disabilitythinking.com/disabilitythinking/2016/3/28/cripthevote-notes-on-crip

#CripTheVote is a nonpartisan campaign to engage both voters and politicians in a productive discussion about disability issues in the United States, with the hope that Disability takes on greater prominence within the American political landscape.

While #CripTheVote is a nonpartisan project, we understand that many people have already developed preferences for particular candidates. This is great–we only ask that everyone is respectful in their interactions with each other. Our primary focus here is on increasing engagement with disability issues as a part of American politics and on the need for that we are all in agreement!

Please note we do not represent the entire disability community nor would we ever claim to do so. There are many ways to create social change and engaging in conversation is one approach.

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