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Ep 17: Invisible Disabilities

Today’s episode is about invisible disabilities with Tiffany Peterson and Linda Williams. Tiffany and Linda share their lived experiences as women with invisible disabilities, the misconceptions about invisible disabilities, and the need for language and symbols about disability that we can all identify with such as iridescent amoebas giving side-eye (listen to find out more).

Transcript

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Related Links

Invisible Disability Project

Tiffany and Lupus

Gallant, Laura and Victoria Sanusi. (July 31, 2017). This Is What It Feels Like To Live With An Invisible Disability. Buzzfeed UK.

Harrison, Paul. (October 25, 2017). Thousands share their invisible disabilities on Twitter. BBC.

Sauder, Kim. (December 27, 2017). Why I Dislike the ISA and Why I Think it has Failed. Cripppledscholar.com

About

Tiffany smiles radiantly with dimpled cheeks wearing large gold hoop earrings and a colorful Haitian headwrap with swirls of bright green, yellow, black and red. Her black & brown tortoise shell glasses rest atop her nose.
Tiffany smiles radiantly with dimpled cheeks wearing large gold hoop earrings and a colorful Haitian headwrap with swirls of bright green, yellow, black and red. Her black & brown tortoise shell glasses rest atop her nose.

Tiffany Peterson is a New York City-based patient advocate whose inspiration rose from her own personal battles within the healthcare system. In 2012 Peterson founded LupusChat, a patient-driven online community designed to educate all entities in the healthcare spectrum thus sparking innovative discussions and breaking restrictive barriers between patients and various healthcare stakeholders. She is a vibrant advocate and longstanding member of the Society for Participatory Medicine informing healthcare professionals and patients how to implement this into their practices. As a proud member of The Walking Gallery, she speaks on the importance of patient-centered care. Peterson has presented at numerous medical conferences such as Epharma, Health Datapalooza, ONC National Health IT Consumer Summit.

Website: tiffanyandlupus.com

Twitter: @TiffanyAndLupus and @Lupus_Chat

Collage of an Ink pen drawing of many books on a bookshelf and a color photograph of a woman wearing a black blouse with a pink peony pinned on the left lapel. The color photograph is superimposed upon the ink pen drawing.
Collage of an Ink pen drawing of many books on a bookshelf and a color photograph of a woman wearing a black blouse with a pink peony pinned on the left lapel. The color photograph is superimposed upon the ink pen drawing.

Dr. Linda Williams is a Visiting Scholar at the University of San Diego’s School of Leadership and Education Sciences. Her research focuses on Leadership, Inclusion, and discovering paths to Equity for disabled students, and adults. She is also a licensed, Clinical Psychologist who combined lived experiences and disability activism with a social vision to found Invisible Disability Project, (IDP). IDP is a social/cultural movement and an educational media project that consciously disrupts “invisibility” imposed upon invisible disabilities at the intersections of race, class, gender, and sexuality. Specifically, IDP envisions a world where people with Invisible disabilities no longer encounter barriers to equitable public education, competitive employment, healthcare, personal relationships, technology, media representation, laws, and policy. IDP rejects “normalcy” as a form of identification to be aspired to and seeks to reclaim identities previously rendered “invisible.” More specifically, IDP aims to reveal how “bodily diversity” and “neurodiversity” more aptly describe every human experience as opposed to the “normal” and “abnormal” binaries. IDP effects change through educational initiatives for schools through the Pause, Ask, Listen (PAL) K-12 Program, the upcoming IDP online Support, and Education services, This is Me personal video storytelling platform,  public conversations, and interactive online content with the goal of creating an informed, mutually supportive community. Stop by and say hello!

Website: https://www.invisibledisabilityproject.org

Facebook: https://www.facebook.com/invisibledisabilityproject/

Twitter: https://twitter.com/endinvisibility

 

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DONATE to the Disability Visibility Project®

 

Credits

Cheryl Green, Audio Producer and Text Transcriptionist

Lateef McLeod, Introduction

Mike Mort, Artwork

Theme Music (used with permission of artist)

Song: “Hard Out Here for A Gimp”

Album: NO BIG DEAL

Artist: Wheelchair Sports Camp

Music

Lighting the Night” and Peace Flowerby Ketsa. (Source: freemusicarchive.org. Licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.)

Plinky Plonky” by Plushgoolash. (Source: freemusicarchive.org. Licensed under a  Attribution-NonCommercial-ShareAlike License.)

Big Gay Water Fight” by Plushgoolash. (Source: freemusicarchive.org. Licensed under a  Attribution-NonCommercial-ShareAlike 3.0 International License.)

Sounds

“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.

8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.

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