Ep 17: Invisible Disabilities
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Today’s episode is about invisible disabilities with Tiffany Peterson and Linda Williams. Tiffany and Linda share their lived experiences as women with invisible disabilities, the misconceptions about invisible disabilities, and the need for language and symbols about disability that we can all identify with such as iridescent amoebas giving side-eye (listen to find out more).
Tiffany and Lupus (now called Lupus Chat)
Gallant, Laura and Victoria Sanusi. (July 31, 2017). This Is What It Feels Like To Live With An Invisible Disability. Buzzfeed UK.
Harrison, Paul. (October 25, 2017). Thousands share their invisible disabilities on Twitter. BBC.
Sauder, Kim. (December 27, 2017). Why I Dislike the ISA and Why I Think it has Failed. Cripppledscholar.com
Tiffany Peterson is a New York City-based patient advocate whose inspiration rose from her own personal battles within the healthcare system. In 2012 Peterson founded LupusChat, a patient-driven online community designed to educate all entities in the healthcare spectrum thus sparking innovative discussions and breaking restrictive barriers between patients and various healthcare stakeholders. She is a vibrant advocate and longstanding member of the Society for Participatory Medicine informing healthcare professionals and patients how to implement this into their practices. As a proud member of The Walking Gallery, she speaks on the importance of patient-centered care. Peterson has presented at numerous medical conferences such as Epharma, Health Datapalooza, ONC National Health IT Consumer Summit.
Twitter: @TiffanyAndLupus and @Lupus_Chat
Dr. Linda Williams is a Visiting Scholar at the University of San Diego’s School of Leadership and Education Sciences. Her research focuses on Leadership, Inclusion, and discovering paths to Equity for disabled students, and adults. She is also a licensed, Clinical Psychologist who combined lived experiences and disability activism with a social vision to found Invisible Disability Project, (IDP). IDP is a social/cultural movement and an educational media project that consciously disrupts “invisibility” imposed upon invisible disabilities at the intersections of race, class, gender, and sexuality. Specifically, IDP envisions a world where people with Invisible disabilities no longer encounter barriers to equitable public education, competitive employment, healthcare, personal relationships, technology, media representation, laws, and policy. IDP rejects “normalcy” as a form of identification to be aspired to and seeks to reclaim identities previously rendered “invisible.” More specifically, IDP aims to reveal how “bodily diversity” and “neurodiversity” more aptly describe every human experience as opposed to the “normal” and “abnormal” binaries. IDP effects change through educational initiatives for schools through the Pause, Ask, Listen (PAL) K-12 Program, the upcoming IDP online Support, and Education services, This is Me personal video storytelling platform, public conversations, and interactive online content with the goal of creating an informed, mutually supportive community. Stop by and say hello!
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Cheryl Green, Audio Producer and Text Transcriptionist
Lateef McLeod, Introduction
Mike Mort, Artwork
Theme Music (used with permission of artist)
Song: “Hard Out Here for A Gimp”
Album: NO BIG DEAL
Artist: Wheelchair Sports Camp
“Lighting the Night” and “Peace Flower” by Ketsa. (Source: freemusicarchive.org. Licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 License.)
“Plinky Plonky” by Plushgoolash. (Source: freemusicarchive.org. Licensed under a Attribution-NonCommercial-ShareAlike License.)
“Big Gay Water Fight” by Plushgoolash. (Source: freemusicarchive.org. Licensed under a Attribution-NonCommercial-ShareAlike 3.0 International License.)
“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.
“8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.
Excellent interview! Love the amoeba disability icon idea. <3
Thanks very much, Steph!
It was my pleasure Alice. I debated rejoining Twitter and had it not been for doing so I would have missed your podcast so I’m grateful.
Awww, thanks a bunch!! Hope Twitter doesn’t become too much of a drag for you 🙂
Hahaha sadly, it’s too late for that. Although I’m still learning to use Hootsuite to manage Twitter with my other accounts Hootsuite itself isn’t accessible.
Oh, I use Tweetdeck! I like it much better than Hootsuite. Not sure how accessible it is though. It’s a lifesaver.