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9/13 #DOnetwork Twitter Chat: Forum on LTSS

Blue Twitter bird icon with speech bubbles. One bubble includes 4 icons for different disabilities: a wheelchair, a brain, hands doing ASL, person with a cane.


California Governor Forum on LTSS (Long Term Services and Supports)

Thursday, September 13, 2018

3-4 PM Pacific

In partnership with the Disability Organizing Network, the Disability Visibility Project® will host a Twitter chat on Long Term Services and Supports with in conversation with candidates for California Governor.

We will first ask the candidates a series of questions to these candidates about LTSS in California and will leave time for any participant to talk to the candidates about their concerns. Participants can respond to the questions as well.

Everyone is welcome to participate but please know the conversation will be focused on California LTSS issues. There are links below on how to participate in a Twitter chat if this is your first time.

According to the the Centers for Medicare and Medicaid Services, Long-Term Services and Supports can be described as the following:

-Care provided in the home, in community-based settings, or in facilities, such as nursing homes

-Care for older adults and people with disabilities who need support because of age; physical, cognitive, developmental, or chronic health conditions; or other functional limitations that restrict their abilities to care for themselves

-A wide range of services to help people live more independently by assisting with personal and healthcare needs and activities of daily living, such as:

  • Eating
  • Taking baths
  • Managing medication
  • Grooming
  • Walking
  • Getting up and down from a seated position
  • Using the toilet
  • Cooking
  • Driving
  • Getting dressed
  • Managing money

For more about LTSS in California and nationally

California Collaborative for Long Term Services and Supports

Summary of the Enacted 2018-2019 Budget: Impact on California’s Older Adults and People with Disabilities (The SCAN Foundation, July 25, 2018)

Justice in Aging’s Statement on California’s Proposed Budget (January 12, 2018)

About the Coordinated Care Initiative,

Advocate’s Guide to California’s Coordinated Care Initiative (Justice in Aging, December 2017)

UCSF Community Living Policy Center: State Managed LTSS (including California)

Long-Term Care Alternatives (Home and Community-Based Service Options) State of California

Community-Based Adult Services (CBAS) State of California

Department of Developmental Services, State of California

Medicaid Long Term Services and Supports

Medicare Long Term Care

Medicaid Long Term Services and Supports: A Primer (Kaiser Family Foundation, December 15, 2015, Erica L. Reaves and MaryBeth Musumeci)


The The California Foundation for Independent Living Center (CFILC) Disability Organizing Network is a statewide disability advocacy network of 28 Independent Living Centers and the communities they serve. In each center there is a full time staff person devoted to increasing civic participation through community organizing, education and advocacy around issues that affect the Disability Communities.


Twitter: @DOnetworkorg

The Disability Visibility Project® is a community partnership with StoryCorps and an online community dedicated to creating, sharing, and amplifying disability media and culture founded by Alice Wong. Check out the Disability Visibility podcast for episodes about disability issues and culture:


Twitter: @DisVisibility

How to Participate

Follow @DOnetworkorg and @DisVisibility for the latest information about the chat.

At the time of the chat, click on the ‘Latest’ tab for the hashtag #DOnetwork. This will show you the questions and everyone’s responses in real time.

If you might be overwhelmed by the amount of tweets and only want to see the chat’s questions so you can respond to them, check @DisVisibility’s account.

Another way to participate in the chat is to use this app that allows you to pause the chat if the Tweets are coming at you too fast:

Here is a link for people who are new to Twitter on starting an account and how to use it:

Here’s an article about how to participate in a Twitter chat:

Check out this captioned ASL explanation of how to participate in a chat by @behearddc

Introductory Tweets and Questions for the Chat

Welcome to the #DOnetwork chat on Long Term Services & Supports with candidates for CA governor. This chat is co-hosted by @DOnetworkorg and @DisVisibility. Full disclosure: @DisVisibility is a paid consultant for this chat.

Remember to use the hashtag when you tweet. If you respond to a question such as Q1, your tweet should follow this format: “A1 [your message] #DOnetwork”

While we have questions candidates for CA gov, this is an opportunity for all of us to share our vision for LTSS in the future and what we want from our elected officials now and after the November election. Feel free to respond to the all Qs! #DOnetwork

Everyone is welcome to participate but please know the conversation will be focused on California-related Long Term Services and Supports. LTSS covers a wide range of services in the community & institutions. For more:  #DOnetwork

FYI on some terms we might use:

Medi-Cal = Medicaid in California

IHSS = In Home Supportive Services

MSSP = Multipurpose Senior Services Program (MSSP)

Dual eligibles = people who have both Medicare & Medi-Cal

CBAS = adult day health care


Q1 Welcome! Please introduce yourself and share anything about where you are Tweeting from (not required), what organization you are with (if any), or any links about you, your work, or advocacy #DOnetwork

Q2 Candidates for CA gov: What is your understanding of the state of LTSS in California and the challenges our state faces in protecting and improving these services & programs for children, adults, & older adults? #DOnetwork

Q3 Candidates for CA gov: As Governor, how will you uphold the Olmstead decision that ruled that people have the right to receive community-based state-funded services rather than institutions? For more on Olmstead: #DOnetwork

Q4 Candidates for CA gov: What are your priorities as Governor on coordinating, financing, and integrating LTSS, including programs such as IHSS, CBAS, MSSP, etc, with healthcare & other supportive services? #DOnetwork

Q5 Candidates for CA gov: Independent Living Centers have been providing different types of LTSS services to local communities. How will you support the capacity of ILCs to continue this work? #DOnetwork

Q6 Candidates for CA gov: With a growing population of older adults & people with disabilities, what is your plan for the state budget in investing & improving the LTSS system to make sure community living is an option for all Californians? #DOnetwork

Q7 Everyone on this chat: What are your ideas on how LTSS can be more effective for people with disabilities of all ages, including kids, young people & adults? #DOnetwork

At this point we would like to open up the chat to the participants to ask questions directly to the candidates about LTSS in California. Don’t forget to include #DOnetwork with your questions!

This concludes our #DOnetwork chat on Long Term Services and Supports with California gubernatorial candidates. Join us on 11/1 for our next chat on voting right & accessibility! Details coming soon.

A compilation of Tweets from this chat will be up shortly on @DOnetworkorg and @DisVisibility’s websites. Please continue the convo! And don’t forget to sign up to the #DONetwork for the latest news & events including our future Twitter chats:

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