In partnership Caring Across Generations and the Disability Visibility Project invites you to a Twitter chat on care work, families, caregiving, and interdependence on November 19, 2018, 4 pm Eastern. This chat is for any person with a disability who uses personal assistance, family members, caregivers, home care workers, and anyone interested in learning more about care work and the different communities involved including paid and unpaid care providers and advocates for workers’ rights. We want to hear your stories and experiences of these important issues.
For more about Caring Across Generations: https://caringacross.org/
For more about the Disability Visibility Project: https://disabilityvisibilityproject.com/about/
Radio story about care work featuring disabled people and home care workers in California, “Caring Relationships: Negotiating Meaning and Maintaining Dignity,” hosted by Laura Flynn and produced by Stephanie Guyer-Stevens and Alice Wong for Making Contact radio (April 2016, audio with text transcript).
Episode 6, Disability Visibility podcast: “Labor, Care Work, and Disabled Queer Femmes with Leah Lakshmi Piepzna-Samarasinha Stacey Milbern” (October 22, 2017, audio and text transcript)
How to Participate
If you become overwhelmed by the amount of tweets and only want to see the chat’s questions so you can respond to them, check @CaringAcrossGen’s account during the hour.
Another way to participate in the chat is to use this app that allows you to pause the chat if the Tweets are coming at you too fast: http://www.tchat.io/
Here’s an article about how to participate in a Twitter chat: https://www.adweek.com/digital/how-to-join-a-twitter-hashtag-chat/
Check out this captioned ASL explanation of how to participate in a chat by @behearddc
Introductory Tweets and Questions for the chat
Welcome to the #CareChat Twitter discussion about care work, families, and interdependence! This chat is co-hosted by @CaringAcrossGen and @DisVisibility. Full disclosure @DisVisibility is a paid consultant for this chat.
Remember to use the #CareChat hashtag when you tweet. If you respond to a question such as Q1, your tweet should follow this format: “A1 [your message] #CareChat”
Please note: a variety of terms may be used during #CareChat such as home care, personal assistance, caregiving, care work, interdependence and LTSS (long term services and supports).
Q1 Please introduce yourself and share why care work is important. Feel free to include anything about your work, advocacy, or how you spend your time. Don’t be shy and add any links about yourself! #CareChat
Q2 Whether you are a person who uses personal assistance, a home care worker, home health aide, family caregiver, advocate, or ally/co-conspirator, what is your relationship to care work? If you are part of a care team, please describe it. #CareChat
Q3 On language: ‘care’ is a term that can be fraught. It’s a form of labor but it’s also much more than that. What terms do you use to describe care work? What is misunderstood about ‘care’? #CareChat
Q4 What are some examples of representation of care work and family caregiving in television and film? What is missing when it comes to telling stories about people who provide and rely on care work? #CareChat
Q5 For people who use personal assistance for daily activities, such as disabled people and older adults, what are the challenges in finding, coordinating, managing, and keeping care workers, whether they are paid or unpaid providers such as family members? #CareChat
Q6 For people who identify as attendants, aides, care workers, family caregivers, and other providers of care, what are your experiences like? What are some ways your work is valued and supported (or not)? #CareChat
Q7 We are all intimately tied together. No one can survive alone. How are care workers and the people they assist interdependent on one another? How can we support each other? #CareChat
Q8 In what ways is care work a racial, disability, gender, immigrant, labor, and economic justice issue? What changes are needed about care work, the multiple communities involved in it, and the systems that provide care? #CareChat
This concludes our #ChatChat discussion on chat on care work, families, and interdependence. Thank you for joining us today! For more, contact @CaringAcrossGen & @DisVisibility
Continue the #ChatChat conversation! A compilation of Tweets from this chat will be Tweeted shortly, check the tag.