Ep 55: Self Advocacy
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There are all kinds of advocacy within the disability community. Self advocacy is one unique type that is grounded in a movement, history, and community of people. Today we’re going to explore what self advocacy is with two people who identify as self-advocates: Noor Pervez and Finn Gardiner. You’ll hear Noor and Finn talk about how they first learned about the self advocacy movement and what it meant to them to be self advocates.
Autism Campus Inclusion (ACI) Leadership Academy
Autistic Self Advocacy Network
Self Advocates Becoming Empowered
Baggs, A.M. (2005). The Meaning of Self Advocacy. Autistics.org
Bascom, Julia. (2002). Loud Hands: Autistic People, Speaking.
Brown, Lydia, Ashkenazy, E., Giwa Onaiwu, Morenike. (2017). All the Weight of Our Dreams: On Living Racialized Autism.
(2014). Self Advocacy Position Statement. The Arc and American Association on Intellectual and Developmental Disabilities.
Finn Gardiner is a tireless disability rights advocate, primarily interested in educational equity, intersectional justice, comparative policy, and inclusive technology. He holds a Master of Public Policy degree from the Heller School for Social Policy and Management at Brandeis University and a bachelor’s degree in sociology from Tufts University.
He currently works with the Lurie Institute for Disability Policy at Brandeis University and the Autistic Self Advocacy Network. Throughout his work, Finn combines disability advocacy, policy analysis and research, and written and visual communications through policy briefs, original reports and white papers, and contributions to research projects. His research and advocacy interests include education and employment for autistic adults, comparative disability policy, inclusive technology, LGBTQ cultural competency, and policy that takes into account the intersections between disability, race, LGBTQ identities, class, and other experiences. Finn recently worked with a team of researchers at the University of Massachusetts Medical School and the Human Services Research Institute on a project that gauged attitudes about the creation of an autism database in Massachusetts in order to create policy recommendations for the state.
In addition to his duties with Lurie and ASAN, Finn also serves as a member of the Board of Directors at the Human Services Research Institute, a nonprofit dedicated to research and policy advocacy benefiting people with disabilities and seniors.
Finn is a seasoned public speaker who has appeared at a variety of venues, including the Obama White House’s 2016 LGBTQ Disability Day panel, the National Council on Disability’s panel on inclusive technology for people with disabilities, the United Nations’ 2016 Disability and Ageing Symposium, and the 2015 and 2017 American Association on Intellectual and Developmental Disabilities national conferences.
Finn’s writing has been published in NOS Magazine, The Thinking Person’s Guide to Autism, and the anthology All the Weight of our Dreams.
Noor Pervez is a community organizer who works on disability, racial, trans, queer and religious justice. He has given presentations on everything from trans folks with eating disorders to how to support queer Muslims all over the US.
He is the Accessibility Director on the board of Masjid Al Rabia, on the Muslim Youth Leadership Council, and a board member for the Trans Student Educational Resource.
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Geraldine Ah-Sue, Audio Producer
Alice Wong, Writer, Producer, Interviewer
Cheryl Green, Text Transcript
Lateef McLeod, Introduction
Mike Mort, Artwork
Theme Music (used with permission of artist)
Song: “Dance Off”
Artist: Wheelchair Sports Camp
“Reckoning” by Podington Bear (Reckoning by Podington Bear is licensed under a Attribution-NonCommercial 3.0 International License)
“VOCODER countdown” by Jack_Master. This work is licensed under the Creative Commons 0 License.
“8 Bit Beeping Computer Sounds” by sheepfilms. This work is licensed under the Creative Commons 0 License.
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