CategoryDVP Blog Posts and Essays

Graphic with a black background with a photo of a 40ish mixed race Sri Lankan, Irish and Galician nonbinary femme with curly brown silver and purple hair, lying on a couch looking at the viewer horizontally. They have rose gold aviator frames, thick eyebrows, red lipstick and sand colored skin, and are looking at the viewer with a kind of tired but hopefully crip wonder. They wear a blue denim vest with a pin that says Neurodivergent Universe above a pink and blue image of a ringed planet, and a black tank top with yellow lettering that read Talk To Plants, Not Cops is barely visible. They have a tattoo of the words "We begin by listening" in magenta cursive script on their left arm.

Posted 3 weeks ago DVP Blog Posts and Essays

where do we go from here? a roundtable from some disability justice organizers in this the only moment in time

where do we go from here? a roundtable from some disability justice organizers in this the only moment in time Leah Lakshmi Piepzna-Samarasinha Something I keep thinking this … Continue Reading where do we go from here? a roundtable from some disability justice organizers in this the only moment in time

Photo of Alice Wong in front of a cement wall. She is wearing a blue cardigan and sitting in a power chair. She is staring intently at the camera, wearing a bold red lip color, and a trach at her neck. Photo credit: Eddie Hernandez Photography.

Posted February 22, 2023 DVP Blog Posts and Essays

Creativity and Recovery: An Update

Last summer I wrote about several major medical crises that led to 4 weeks in the intensive care unit. Months later, my recovery has been slow, difficult, and frustrating. Healing … Continue Reading Creativity and Recovery: An Update

Graphic in blue with white starbursts in the background. In the center in large text is 2022 with 20 stacked on top of 22. Below in white text: DVP Year in Review

Posted January 1, 2023 DVP Blog Posts and Essays

DVP: 2022 Year in Review

Hello my friends! Whew, what a year, huh? If you told me what would happen in the beginning of last year I would have never believed you. Here’s a brief … Continue Reading DVP: 2022 Year in Review

Graphic with a gray background. From left to right: Digital collage that includes Black and white photo portraits of three people staring pensively at the camera, an Afro-Latina person with medium length curly hair swept to one side of her shoulders, An Asian person smiling, she is wearing a trach at her neck and wearing a crew neck blouse. She is sitting in her power wheelchair. An Iranian person with short, dark curly hair and circular. They wear a black shirt while their hand rests on their chin. Around each persons head rests an illustrated cream colored circle crown on a purple background. Artist credit: Jen White-Johnson

Posted September 12, 2022 DVP Blog Posts and Essays

Society of Disabled Oracles

Hello everyone! I wrote about disabled oracles in the past such as a talk I gave on August 6, 2020, “The Last Disabled Oracle,” as part of Assembly for … Continue Reading Society of Disabled Oracles

Graphic with a white background featuring an illustrated portrait of Alice Wong and Ashanti Fortson by Ashanti, with a purple, pink, mauve, and blue color palette. Wong is an Asian American woman wearing a dark blue jacket and a pink-and-lavender chevron-patterned scarf, as well as a mask over her nose with a tube for her Bi-Pap machine. Fortson is an Afro-Mexican person wearing light yellow star earrings, large and round pink glasses, and a dark blue knit shawl with accents in bright pink. Clouds swirl in front of the figures, and stars are visible in the night sky behind them. Shooting stars with bright pink trails are scattered throughout the portrait. Near the bottom of the image, embellished text reads “Alice and Ashanti,” and the text “#CommunityAsHome” is underneath.

Posted August 24, 2022 DVP Blog Posts and Essays

Community As Home – Portraits

In 2020 artist Ashanti Fortson and Alice Wong collaborated in a project called Community As Home featuring a series digital portraits centered on the joy, culture, and love of disabled people and … Continue Reading Community As Home – Portraits

Graphic with a dark blue background. In the center is a photo of me in a hospital gown with tubes attached to my arms and face. Multiple pillows are underneath my arms and head. My hands are clasped together in the middle of my body. I have a serious look on my face.

Posted August 7, 2022 DVP Blog Posts and Essays

My ICU Summer: A Photo Essay

My ICU Summer: A Photo Essay Alice Wong Content notes: medical trauma, hospitalization, blood, systemic ableism, death, anxiety This is a semi-accurate account of what happened to … Continue Reading My ICU Summer: A Photo Essay

This is a graphic illustration by Haley Brown with a bright cobalt blue background. There are black lungs filled with dark gray puffy clouds. In the left lung is a yellow canary bird with a red eye in a mid-flight attack pose. In the right lung there is a red circle. Around the lungs there is clear white tubing that is entwined. Above this graphic the white text reads: #SuckYouPhilips

Posted May 13, 2022 DVP Blog Posts and Essays

May 2022 Philips Recall Summary

In the summer of 2021, Philips Respironics issued a recall notification of a number of their CPAP, BiPap, and ventilators in the United States. A group of disabled people … Continue Reading May 2022 Philips Recall Summary

Graphic with a light blue background featuring a Taiwanese woman with black shoulder length hair and a grey shirt, side-eyeing a teddy-bear looking Pomeranian who dresses in a grey turtleneck sweater.

Posted February 9, 2022 DVP Blog Posts and Essays

Crip Siblings: Interview with Chun-san (Sandie) Yi

Alice: Sandie, I am just so delighted to talk with you today and what I loved immediately is that you titled our Zoom meeting ’Crip Siblings’! Sandie: [laughs] Alice: And … Continue Reading Crip Siblings: Interview with Chun-san (Sandie) Yi

Posted January 17, 2022 DVP Blog Posts and Essays

Update on Philips CPAP, BiPAP, and Ventilator Recall

In the summer of 2021, Philips Respironics issued a recall notification of a number of their CPAP, BiPap, and ventilators in the United States. A group of disabled people impacted … Continue Reading Update on Philips CPAP, BiPAP, and Ventilator Recall

Graphic with a pale blue background with an illustration of a megaphone in black on the left side. On the right, black text: High-Risk Pandemic Stories: A Syllabus, 2020-21, DisabilityVisibilityProject.com

Posted January 9, 2022 DVP Blog Posts and Essays

High-Risk Pandemic Stories: A Syllabus

Since March 2020 I have been collecting strands of disabled wisdom about the pandemic and trying to gather, weave, and share them. Disabled, fat, older, poor, immunocompromised, and chronically ill … Continue Reading High-Risk Pandemic Stories: A Syllabus

Graphic in red with starburst designs on the left and right. In the center in large sized text: 2021, below in smaller sized font in white: Disability Visibility Project Year in Review

Posted January 9, 2022 DVP Blog Posts and Essays

DVP: 2021 Year in Review

Happy New Year! Better late than never, am I right? 2021 was SOME year. Too many expletives cannot adequately express my frustration and concern right now. I hope you are … Continue Reading DVP: 2021 Year in Review

Graphic with a black background and a photo of Maya-Camille Broussard, a young Black woman with curly black hair who is wearing gold hoop earrings. She is wearing a bright red top with ruffled short sleeves and a denim apron. She is holding a white ceramic cake stand with a pie that has a golden crust.

Posted November 2, 2021 DVP Blog Posts and Essays

Interview with Maya-Camille Broussard

I love pies and any kind of baked goods. Below is my interview with Maya-Camille Broussard, the founder and creator of Justice of the Pies, a bakery based in Chicago. … Continue Reading Interview with Maya-Camille Broussard

$Graphic with a leaf green background. Left: A white woman with short hair and an occluded cataract on her right eye wearing purple hearing aids and a pearl necklace, looking with raised eyebrows at camera between trees. Photo credit: Lis Mitchell, 2021. Right: Cover image of Being Seen: One Deafblind Woman’s Fight to End Ableism by Elsa Sjunneson. From the letter “I” in “BEING,” the color of Elsa’s cataract refracts in a rainbow-colored prismatic effect over a dark background. “Deafblind” is emphasized with light.$

Posted October 24, 2021 DVP Blog Posts and Essays

Below is an interview with Emily Paige Ballou, Sharon daVanport, and Morénike Giwa Onaiwu, the co-editors of a brand new anthology, Sincerely, Your Autistic Child (Beacon Books), available now. For … Continue Reading Interview with co-editors of Sincerely, Your Autistic Child