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DVP 2020: Year in Review

Graphic with a white border and a pale blue-green background. On the left is ‘2020’ in stylized numerals with 20 20 stacked on top of each other. On the right in orange-red, ‘YEAR I REVIEW’ below in smaller text in dark blue, ‘DISABILITY VISIBILITY PROJECT’
Graphic with a white border and a pale blue-green background. On the left is ‘2020’ in stylized numerals with 20 20 stacked on top of each other. On the right in orange-red, ‘YEAR IN REVIEW’ below in smaller text in dark blue, ‘DISABILITY VISIBILITY PROJECT’

Hello comrades! I looked at my 2019 year in review and it felt like those events occurred eons ago. 2020 has been ROUGH for people all over the world. We are going through a historic moment and nothing will be the same again. Personally I experienced a lot of highs and lows and friendships and community kept me going. Thank you for your ongoing support.

This post recaps the major activities of the Disability Visibility Project (DVP) and some personal work. I have a lot of exciting things planned for the next two years and I can’t wait to share this adventure with you. May we all enter the new year with strength, care, hope, and solidarity. 





Edited Disability Visibility: First-Person Stories from the Twenty-First Century, Vintage Books (2020). 

Edited and curated Break The Story Volume IV: Disability Visibility for the Pop Culture Collaborative

“The Political Is Personal,” PEN America

“There Is No One Way,” Open Space

Voters With Disabilities Face Barriers in 2020 From COVID-19,” Teen Vogue 

“I’m disabled and need a ventilator to live. Am I expendable during this pandemic?” Vox 


Essays, articles, and blog posts for the DVP

Message from the Future: Disabled Oracle Society

Freedom for Some Is Not Freedom for All

Disabled Oracles and the Coronavirus

Ode to A Spit Cup

7 Documentaries to Watch After Crip Camp

Loving Stacey Park Milbern: A Remembrance

#StaceyTaughtUs Syllabus: Work by Stacey Park Milbern co-authored with Leah Lakshmi Piepzna-Samarsinha

Message to The Future

Freedom for Some Is Not Freedom for All


Conducted 9 Q&As with the following people for the DVP

Q&A with Amanda Leduc on Fairy Tales and Disability

Q&A with Marieke Nijkamp: The Oracle Code

Q&A with Kay Ulanday Barrett

Food Insecurity & COVID-19: Interview with Héctor M. Ramírez

Q&A with Sara Hendren

Q&A with Jaipreet Virdi

Q&A with Eiko Kimura 木村英子様との質疑応答

Q&A with Riva Lehrer

Q&A with Andres “Jay” Molina and Alexis Neophytides


Published and edited #ADA30InColor 

A series of 13 original essays on the past, present, and future of disability rights and justice by disabled BIPOC (Black, Indigenous, People of Color) writers. Audio narration by Alejandra Ospina and plain language summaries by Finn Gardiner. Project Coordinator, Andraéa LaVant.

“ADA 30: No Justice for Disabled Native People” by Jen Deerinwater

“#BlackAutisticJoy in ADA 30” by Timotheus Gordon, Jr.

“Building Bridges as A Disabled Korean Immigrant” by Miso Kwak

“We Must Reimagine Ourselves” by Allison Masangkay

“Missing Step” by Reyma McCoy McDeid

“The Future Liberation of Disability Movements” by Valerie Novack

“They can take away the Mosque, but they’ll never take my faith” by Noor Pervez

“The burden and consequences of self-advocacy for disabled BIPOC” by Aparna R.

“After 30 Years the ADA Leaves People with Psychiatric Disabilities Behind” by Héctor M. Ramirez

“We Change, We Wait” by Lia Seth

“Decolonization as a Strategy for Accommodating Disabilities” by Rachel Setzer

“SixPointSeventyFive (6.75)” by Teefloetry

“How the ADA Gave Birth to a Black Sexpert” by Robin Wilson-Beattie


Edited and published 15 guest blog posts for the DVP

Dear Kevin Hart, The MDA is Heartless by Emily Wolinsky

A Very Kind Conversation Between a Cyborg and Some Biohackers by the Cyborg Jillian Weise in conversation with Berkelly Gonzalez, Cobalt Barnett, Hylyx Hyx, Jacob Boss and Ryan O’Shea & with help excerpting the transcript from Sandra Beasley

Life is Too Short for Someone Else’s Shame by Amanda Leduc

Cripping The Resistance: No Revolution Without Us by Leah Lakshmi Piepzna-Samarasinha

…felt half seen by Vyoma Raman

Abolition Must Include Psychiatry by Stella Akua Mensah and edits by Stefanie Lyn Kaufman-Mthimkhulu 

Interview with Hannah Gadsby on autism, accommodations and performing live by Sharon daVanport

Reasons to be Angry During a Pandemic by Hannah Soyer 

A Paradoxical History of Black Disease by Cyrée Jarelle Johnson

My Life Has Quality by Elsa R. Sjunneson

Yom HaShoah in the times of COVID-19 by Zipporah Arielle 

How Colonial Visual Cultures Have Worsened This Pandemic and What Needs To Change by Khairani Barokka

Fatphobia, Ableism, and the COVID-19 Pandemic by Finn Gardiner

Disabled Communities in the COVID-19 Pandemic by Amy Gaeta

Yes, It *Is* About Disability: Reflections on Disability and Media Criticism After Sundance 2020 by Laura Dorwart 


Re-published the following on the DVP website  

A Preface to Advocacy by Erin Gilmer 

26 ways to be in the struggle, beyond the streets (June 2020 update) by Ejeris Dixon, Piper Anderson, Kay Ulanday Barrett, Ro Garrido, Emi Kane, Bhavana Nancherla, Deesha Narichania, Sabelo Narasimhan, Amir Rabiyah, and Meejin Richart. Design by Alana Yu-lan Price. Accessible version adapted by Alejandra Ospina and Akemi Nishida.


Co-organized 5 online book events with the Paul K. Longmore Institute on Disability


Co-produced and hosted 28 episodes of the Disability Visibility podcast (episodes 68-93) with audio producers Geraldine Ah-Sue and Cheryl Green

Ep 93: Indigenous Disabled Creators with Johnnie Jae

Ep 92: Disabled Afro-Latina Artists with Jen White-Johnson

Ep 91: Disabled Engineers with Emily Ackerman

Ep 90: Disabled Immigrants with Conchita Hernandez Legorreta 

Ep 89: Museums with Amanda Cachia

Ep 88: Policy with Liz Weintraub

Ep 87: Climate Action with Kera Sherwood-O’Regan

Ep 86: Transportation with Maddy Ruvolo

Ep 85: Fat Liberation with Max Airborne and Caleb Luna 

Ep 84: Anthologies with Kelly Jensen

Ep 83: Disabled Dancers with India Harville

Ep 82a: Americans with Disabilities Act with Conchita Hernandez Legorreta

Ep 82: Americans with Disabilities Act with Alice Wong

Ep 81: Bioethics with Joe Stramondo

Ep 80: Fashion with Stephanie Thomas

Ep 79: Disabled Candidates with Amanda Siebe

Ep 78: Hate Crimes with Sachin Pavithran

Ep 77: Mental Health Advocacy with Kathy Flaherty

Ep 76: Film Festivals with Alex Locust and Karen Nakamura

Ep 75: Coronavirus and Disaster Planning with Germán Luis Parodi and Valerie Novack

Ep 74a: Coronavirus and Spirituality with Elliot Kukla

Ep 74: Coronavirus and Caregiving with Heather Watkins and Dawn Gibson

Ep 73: Housing with Sean Betouliere and Ian Smith

Ep 72: Disabled Curators with Anna Berry

Ep 71: Games with André J. Daughtry and Cherry Thompson

Ep 70: Black Deaf Filmmakers with Jade Bryan

Ep 69: Theatre with Jason Dorwart and Samuel Valdez

Ep 68: Accessibility with Shannon Finnegan



Co-hosted 13 #CripTheVote Twitter chats and live-tweets of the Democratic debates with Gregg Beratan and Andrew Pulrang on political participation and the disability community including two Twitter town halls with Senator Elizabeth Warren and Pete Buttigieg. Check out all the recaps here. 


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