High-Risk Pandemic Stories: A Syllabus
Since March 2020 I have been collecting strands of disabled wisdom about the pandemic and trying to gather, weave, and share them. Disabled, fat, older, poor, immunocompromised, and chronically ill folks have been oracles well before this global public health disaster and continue to this day as institutions and leaders treat marginalized communities as disposable.
With the Disability Visibility Project I feel a keen urgency to publish as many pieces about the pandemic because our perspectives and warnings are not heeded. And here we are today with eugenics and systemic ableism displayed nakedly upon the altar of capitalism and white supremacy. I resent the implication that we have to prove our value and reveal our traumas in order to be seen as human and worthy of ‘care.’
We are all doing what we can with what we have. I hope some of the links of high-risk pandemic stories below will be useful.
We are not alone.
I am also intensely uncomfortable at the need to defend our humanity and worth. Too much of my life has been centered on nondisabled expectations.
And yet, this is where we are. #MyDisabledLifeIsWorthy #HighRiskCOVID19 #NEISvoid #DisabilityTwitter #CripTheVote #LongCOVID https://t.co/mhYZ0f8RXW
— Alice Wong 王美華 (@SFdirewolf) January 9, 2022
Recent work
Collection of stories, resources, and Tweets by disabled people about the pandemic since 2020.
Collection of stories, resources, and Tweets by high-risk people in California about vaccine equity in early 2021.
From The Access Issue co-edited with Evette Dionne for Bitch Media
Shot Chaser: What Does It Take to Achieve Vaccine Equity? by Diana Cejas
The Complex Future of Post-Pandemic Work by Julia Metraux
2020-21 DVP interviews
Q&A with Andres “Jay” Molina and Alexis Neophytides
Food Insecurity & COVID-19: Interview with Héctor M. Ramírez
2020-21 Guest essays for DVP
Fatphobia, Ableism, and the COVID-19 Pandemic by Finn Gardiner
Disabled Communities in the COVID-19 Pandemic by Amy Gaeta
Reasons to be Angry During a Pandemic by Hannah Soyer
A Paradoxical History of Black Disease by Cyrée Jarelle Johnson
My Life Has Quality by Elsa R. Sjunneson
Yom HaShoah in the times of COVID-19 by Zipporah Arielle
Cripping The Resistance: No Revolution Without Us by Leah Lakshmi Piepzna-Samarasinha
What the Disabled Community Offered the World by Kaalyn M.
And Now Here We Are by Sam Schäfer
My Year of Nothing but Everything by Emily Ackerman
Moving From Survival by Sandy Ho
High-Risk Vaccine Hesitancy by Brianne Benness
Accessibility and the Lack Thereof in the Film Industry by Carolyn Hinds
How Disabled Mutual Aid Is Different Than Abled Mutual Aid by Leah Lakshmi Piepzna-Samarasinha
2020-21 Disability Visibility podcast episodes
Ep 74: Coronavirus and Caregiving with Heather Watkins and Dawn Gibson
Ep 74a: Coronavirus and Spirituality with Elliot Kukla
Ep 75: Coronavirus and Disaster Planning with Germán Luis Parodi and Valerie Novack
Ep 81: Bioethics with Joe Stramondo
Ep 85: Fat Liberation with Max Airborne and Caleb Luna
Ep 93: Indigenous Disabled Creators with Johnnie Jae
Ep 94: Healthcare Rationing with Britney Wilson
Ep 95: Black Doctors with Disabilities with Dr. Justin Bullock
Articles by me and other interviews
“It’s My Body and I’ll Live if I Want To”
“I’m disabled and need a ventilator to live. Am I expendable during this pandemic?”
Disabled Oracles and the Coronavirus
Freedom for Some Is Not Freedom for All
Message from the Future: Disabled Oracle Society
Voters With Disabilities Face Barriers in 2020 From COVID-19
Night of Ideas keynote on access post-pandemic
Disabled Advocates Demand Better Vaccine Access as They Face Greater Risks of Dying from COVID-19 https://t.co/o3AO1boJJ1 pic.twitter.com/bbxCoU5n0A
— Democracy Now! (@democracynow) February 9, 2021
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