Happy New Year! Better late than never, am I right? 2021 was SOME year. Too many expletives cannot adequately express my frustration and concern right now. I hope you are finding joy and comfort however and whenever you can. Below are some personal and professional highlights as the Disability Visibility Project continues to tell stories and amplify disability culture.
May we all manifest everything we want this year and move beyond survival (although that is a feat in itself).
Your cyborg-night owl-vampire-weirdo comrade,
Photo of Alice Wong, an Asian American disabled woman with a mask over her nose attached to a tube for her ventilator. She is in a power wheelchair and wearing a gray sweatshirt with a tiger and leopard-print red and black pants. Behind her are bamboo trees. Credit: Eddie Hernandez Photography
Co-organized Disability + Pleasure Activism event in January with Integrated Community Services, a conversation with Claudia Alick and adrienne maree brown.
Created some vaccine valentines and vaccine equity memes in February.
Collected stories, resources, and Tweets by high-risk people in California about vaccine equity in early 2021.
Ended the Disability Visibility podcast with episode 100 in April.
Turned in my manuscript for Year of the Tiger , my memoir which will come out fall/winter 2022.
Co-edited The Access Issue with Evette Dionne featuring work by disabled writers and artists.
Through the Disability Visibility substack (a free newsletter), I gave away 184 books by disabled, chronically ill, Mad, d/Deaf writers.
Co-organized with Sandy Ho of the Disability & Intersectionality Summit a series of online events on the life and work of Fannie Lou Hamer centered on book by Dr. Keisha N. Blain, Until I Am Free: Fannie Lou Hamer’s Enduring Message to America , available now from Beacon Press.
Edited Disability Visibility (Adapted for Young Adults): 17 First-Person Stories for Today , available now from Delacorte Press. You can read the introduction here .
Collected stories, resources, and Tweets by disabled people about the pandemic since 2020.
High-Risk Pandemic Stories syllabus 2020-21
Became a parent of a garden snail, Augustus the Slow. Augustus says hello.
Photo of a small garden snail (helix aspersa) on top of a piece of napa cabbage inside a glass habitat with green moss. A small slice of persimmon is behind him.
2021 DVP interviews
Q&A with Rebecca Lamorte
Q&A with Jamison Hill
Q&A with Tory Cross
Q&A with Sabrina Epstein
Interview with Hari Ziyad
Q&A with Kemi Yemi-Ese
Q&A with Ingrid Tischer
Interview with co-editors of Sincerely, Your Autistic Child with Emily Paige Ballou, Sharon daVanport, and Morénike Giwa Onaiwu
Q&A with Jonny Sun
We Move Together: Interview with Kelly Fritsch Megan Linton
Q&A with Emily Voorde
Q&A with Elsa Sjunneson
Interview with Maya-Camille Broussard
2021 Guest essays for DVP
A Boy Like Me by Hari Srinivasan
The King and Lies by Tinu Abayomi-Paul
Still In Texas by Emily Wolinsky
What the Disabled Community Offered the World by Kaalyn M.
And Now Here We Are by Sam Schäfer
My Year of Nothing but Everything by Emily Ackerman
The System is Down by Adam Hubrig
The New National Mental Health Crisis Line Wants to Track Your Location by L. Harris
Disability, Death & the Fight for Justice by Megan Linton
Reimagining the Autistic Mother Tongue by Jane Shi
Pride Feelings by J. Logan Smilges
The Graduate tarot card by Anna Landre, Madeleine Gibbons-Shapiro, & the Georgetown University Disability Studies Class of 2021
Disabled Immigrants: Living on the Edge of Barbwire by Qudsiya Naqui
Major Keys by Britney Wilson
Moving From Survival by Sandy Ho
Supercrips, Solidarity, and Crip Families in The Bad Batch by Dr. Johnathan Flowers
High-Risk Vaccine Hesitancy by Brianne Benness
Accessibility and the Lack Thereof in the Film Industry by Carolyn Hinds
How Disabled Mutual Aid Is Different Than Abled Mutual Aid by Leah Lakshmi Piepzna-Samarasinha
20 Questions for Disability-Inclusive Employers by Aubrie Lee
Marilyn Golden: An Unforgettable Legacy of Wisdom, Dedication, and Results by Diane Coleman
Why We Need to Stop Making Movies about Helen Keller by Cristina Hartman
Reflecting on My Experiences as a Homeless Youth with Disabilities by Rachel Litchman
How CBT Harmed Me: The Interview That the New York Times Erased by Alana Saltz
2021 Disability Visibility podcast episodes
Ep 94: Healthcare Rationing with Britney Wilson
Ep 95: Black Doctors with Disabilities with Dr. Justin Bullock
Ep 96: Art and Technology with Lindsey D. Felt and Vanessa Chang.
Ep 97: Disabled Refugees with Mustafa Rfat
Ep 98: Disabled Students with Alena Morales
Ep 99: Online Activism with Gregg Beratan and Andrew Pulrang
Ep 100: Podcasting with Sarika Mehta, Geraldine Ah-Sue, and Cheryl Green.
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