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High-Risk Pandemic Stories: A Syllabus

Since March 2020 I have been collecting strands of disabled wisdom about the pandemic and trying to gather, weave, and share them. Disabled, fat, older, poor, immunocompromised, and chronically ill folks have been oracles well before this global public health disaster and continue to this day as institutions and leaders treat marginalized communities as disposable. 

With the Disability Visibility Project I feel a keen urgency to publish as many pieces about the pandemic because our perspectives and warnings are not heeded. And here we are today with eugenics and systemic ableism displayed nakedly upon the altar of capitalism and white supremacy. I resent the implication that we have to prove our value and reveal our traumas in order to be seen as human and worthy of ‘care.’

We are all doing what we can with what we have. I hope some of the links of high-risk pandemic stories below will be useful. 

We are not alone. 

Recent work


Collection of stories, resources, and Tweets by disabled people about the pandemic since 2020.

Collection of stories, resources, and Tweets by high-risk people in California about vaccine equity in early 2021. 

From The Access Issue co-edited with Evette Dionne for Bitch Media

Shot Chaser: What Does It Take to Achieve Vaccine Equity? by Diana Cejas

The Complex Future of Post-Pandemic Work by Julia Metraux

2020-21 DVP interviews


Q&A with Andres “Jay” Molina and Alexis Neophytides

Food Insecurity & COVID-19: Interview with Héctor M. Ramírez

Q&A with Tory Cross

Q&A with Sabrina Epstein

Q&A with Ingrid Tischer

2020-21 Guest essays for DVP


Fatphobia, Ableism, and the COVID-19 Pandemic by Finn Gardiner

Disabled Communities in the COVID-19 Pandemic by Amy Gaeta

Reasons to be Angry During a Pandemic by Hannah Soyer 

A Paradoxical History of Black Disease by Cyrée Jarelle Johnson

My Life Has Quality by Elsa R. Sjunneson

Yom HaShoah in the times of COVID-19 by Zipporah Arielle 

Cripping The Resistance: No Revolution Without Us by Leah Lakshmi Piepzna-Samarasinha

What the Disabled Community Offered the World by Kaalyn M.

And Now Here We Are by Sam Schäfer

My Year of Nothing but Everything by Emily Ackerman

Moving From Survival by Sandy Ho

High-Risk Vaccine Hesitancy by Brianne Benness

Accessibility and the Lack Thereof in the Film Industry by Carolyn Hinds

How Disabled Mutual Aid Is Different Than Abled Mutual Aid by Leah Lakshmi Piepzna-Samarasinha

2020-21 Disability Visibility podcast episodes


Ep 74: Coronavirus and Caregiving with Heather Watkins and Dawn Gibson

Ep 74a: Coronavirus and Spirituality with Elliot Kukla

Ep 75: Coronavirus and Disaster Planning with Germán Luis Parodi and Valerie Novack

Ep 81: Bioethics with Joe Stramondo

Ep 85: Fat Liberation with Max Airborne and Caleb Luna 

Ep 93: Indigenous Disabled Creators with Johnnie Jae

Ep 94: Healthcare Rationing with Britney Wilson

Ep 95: Black Doctors with Disabilities with Dr. Justin Bullock

Articles by me and other interviews 


“It’s My Body and I’ll Live if I Want To”

‘It Just Burns Me Up’: Disability Activist Alice Wong Reminds California This Pandemic Is Far From Over

“I’m disabled and need a ventilator to live. Am I expendable during this pandemic?” 

Disabled Oracles and the Coronavirus

Freedom for Some Is Not Freedom for All

There Is No One Way

Message from the Future: Disabled Oracle Society

The Political Is Personal

Voters With Disabilities Face Barriers in 2020 From COVID-19

Night of Ideas keynote on access post-pandemic


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